Sunday, June 17, 2012

Tomorrow is tonsils out day!

I am not sure who is in charge of my clock but it is on steroids these days. Time is flying off in chunks in my honest opinion. We got on a plane the day school let out and headed to Lihue Hawaii...along with several too many other folks! It took us some fancy routing but after 37 hours and a diversion of our own making to Maui we arrived where our clothing had already taken up the corner of the baggage office in Lihui. I probably won't get hired as a travel agent any time soon with my skill set. The nice thing about my job is that we can jump on any flight that has a seat if the gate agent is good at their job....aaaaannnd that would explain how we ended up in Maui for the night, in the rain, with a hotel that had no view unless you like chain link fence and parked cars. On the good side, Hawaii is still Hawaii and it is hard to convince anyone that bad things might go wrong on the way to paradise with kids that are the two best travelers there could be. They simply roll with it. Ok, once I packed up the baby dolls Marina had spread out all over the airport waiting area in Phoenix in order to get the seats they were giving to us, and she went a bit ballistic when I did not stop to fold the doll clothes but we recovered. I was kind of surprised that the folding of the doll clothes was an issue since no one folds ANYTHING at home. Still they love to travel and she and Evan were great. Tully got through that whole 37 hour escapade without once doing anything worse than rolling his eyes...maybe because he was afraid to say anything at all for fear it would be a flood of what I was already thinking about this crazy idea. Lihue was great, but seriously, next time I take my family to Hawaii, Maui is much more suited to the things we love to do, like not drowning in rough surfs. We did really have a blast watching Evan chase the island wild chickens around. He even caught several baby chicks! We had a great place to stay that we found last minute on craigslist in Kauai.There are several great things about working at the airport, and the one I can't get over is that it costs about the same anywhere we go in in America within a few percentage points since we fly really, why go to Myrtle beach when Hawaii just takes longer to get there:)?? Marina finished out the school year with some great things going on, especially in her art and writing skills. Her language skills continue to stagnate, and that brings us to tomorrow. I know what she is saying but that does not count as regular spoken English. As a side note no one has ever actually seen the child's ear drum. Her ear canals are so tiny that no one can see if she has an ear infection or what is going on in there. I have asked the ENT to take the opportunity with Marina being sedated to get in those ears and see what the truth is about all that would, could and should be going on with Marina's hearing. Her hearing tests have always been inconclusive. As you can imagine I am always a bit anxiety ridden when it comes to Marina going in the hospital and being sedated. I happen to know first hand that hospitals are not good places to hang out no matter how great the staff is. Here is where you would expect me to ask for prayer, and here is where I rise to just such a request. Evan has asked many many questions as always when it involves the hospital and a sibling so I feel that he is working through the questions that always lie just under the surface. I am glad he has a chance to address these things in bits and pieces in order to have him grow forward. I am homeschooling Evan this fall and I am so excited at the opportunities we are making lists to accomplish. I really am excited to have the time with just Evan so we can get some one on one time because Marina is like a hurricane most days for met getting to finish a sentence. It simply dawned on me that I would like to talk with Evan again:) If you could hear the mayhem going on around me as I type this you would know what I am talking about. I had to implement a firm rule that a child only gets 4 "Hey Mama LOOK" in a day. I now realize no one can count whatsoever but I do get to say no, you had your times to make me look....I am starting to feel like linda blair in a bad movie my head flies around all day making sure the "mama look!" does not involve a dangerous stunt since NO FEAR has been instilled in these kids. And some days an I told you so just won't cover the big stuff... As expected life around here is as normal as the poster for crazy can adhere to. We just look like a normal family these days. It was really all I ever wanted once I realized how amazing it could be. Normal is synonymous with dysfunctional, right? Father's day was great today. The kids swam with their cousins all day (Hey MAMA LOOK!!) and the taller kids and parents sat around and chatted about anything and everything after a magnificent feast off the senior Dad's grill. Everyone is so tired I feel we will head to bed soon so as not to be late for the surgery tomorrow. I will leave off with a synopsis of my best conversation with Marina lately...."mama? I'm awesome!" Yes Marina, you are awesome!" To which she replies...Thanks Mama!! Kinda hard to argue with that one! We got a puppy at the end of the school year too, and everyone loves a puppy. I have a great video of Marina and Sashi but could not post it due to a program conflict but will work on that. It is pretty cute (Who wouldn't like a video of a kid and a puppy??)Will work towards figuring that out, but enjoy the photos as they are growing up fast just like everyone elses!! Love from Us.


  1. Oh, Cathy, thanks so much for this wonderful update!! I loved the pictures, and as always, you surely do know how to tell a story. Several of them, in fact.

    I hope Marina's ear-check went well and provided the info. needed to asssist her. I can't recall; does she use sign language to supplement spoken communication?

    It's clear that both Evan and Marina are growing swiftly and flourishing. I continue to hope I can meet them in person (you and Tully, too, of course) as well as in virtual reality.

    Thanks again for the very welcome updates...

    Susan in Ky

  2. Hi Marina

    My name is Jenna. You are a brave courageous fighter. you are a special miracle from god, a gift from above, earthly angel,and you are a smilen hero. You are full of happiness, life, smiles, joy, fun,love, and spunk.

    I was born with a rare life threatening disease, and have 14 other medical conditions, and developmental delays.

    I wrote this poem
    Each of us are Special
    Each of us different,
    No one is the same
    Each of are us are unique in our own way,
    Those of us who have challenges, we smile through our day.
    Those who of us who have challenges, we smile through our day.
    It doesn't matter what others say
    we are special anyway.
    What is forty feet and sings? the school chior